Ethical Governance of Tuberculosis Data in Interoperable Electronic Medical Records in Indonesia

Dewi, Ervin Dyah Ayu Masita and Sulistiawati, Sulistiawati (2026) Ethical Governance of Tuberculosis Data in Interoperable Electronic Medical Records in Indonesia. In: The 4th Brawijaya Medical Conference, International Tuberculosis Conference, 11-13 September 2026, Malang, Indonesia. (Submitted)

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Abstract

Background: Tuberculosis (TB) is the leading infectious cause of death. Indonesia ranks second globally in TB burden (10% of global cases) and has the largest gap between estimated incidence and notified cases. Since April 2026, data from 'Cek Kesehatan Gratis' and TB screening, reaching over 100 million people, have been integrated bidirectionally with the 'Sistem Informasi Tuberculosis' enabling interoperable access and exchange of health data across systems. Automated risk assessment allows individuals undergoing health examinations identified as TB suspects. This raises ethical concerns of privacy, confidentiality, communication, autonomy, and family involvement, particularly amid TB-related stigma in Indonesia. This study analyzed the ethical implications of interoperable TB medical records and identified areas to strengthen ethical governance. Methods: Indonesian regulations on TB governance, electronic medical records, health-data integration, and WHO guidelines were analyzed using a normative-descriptive approach, informed by literature on medical ethics, professionalism, and communication. Results: Four findings emerged: (1) WHO guidelines on TB address ethical issues of human rights, equality/justice, and community health, but not data confidentiality, autonomy, and family involvement; (2) National TB regulations emphasize data protection and system security, while autonomy and medical confidentiality remain underemphasized; (3) Consent mechanisms without explicit disclosure require further ethical consideration; (4) Family involvement needs to be addressed within the communal and hierarchical cultural context. Conclusion: Interoperable TB governance must go beyond data security to clarify access, communication, and ethical-professional responsibility while balancing patient autonomy and public health interests. Key words: Tuberculosis; Electronic Medical Records; Interoperability; Data Governance; Medical Ethics

Item Type:	Conference or Workshop Item (Poster)
Subjects:	R Medicine > R Medicine (General)
Divisions:	Faculty of Medical
Depositing User:	ERVIN DYAH AYU MASITA DEWI
Date Deposited:	30 Oct 2026 02:38
Last Modified:	30 Oct 2026 02:50
URI:	http://repository.ubaya.ac.id/id/eprint/51421

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